Living with and conquering Partial Trisomy 13
It may not always be easy, but it's worth it....that's what they say, right?? It's certainly cliché, but it holds true. There are some days that I am sad, angry and frustrated with this hand I've been dealt. There are others that I couldn't imagine my life any other way! There is one key phrase… Continue reading The Journey is Not Always Easy
Today is a GREAT day to celebrate women!! Women are amazing beings and we deserve to be celebrated every day, but today is our day! This day is global day to celebrate the social, economic, cultural and political achievements of women as well as to raise awareness about women's equality. Today, I want to give… Continue reading International Women’s Day
Happy New Year!!! I promised that I would keep up on blogging, but time has not been on my side. There are just not enough hours in the day and the last couple of months have been BUSY!!! A quick recap of the last couple months: school for Luca is still fully remote, Luca lost… Continue reading A New Year with a New Update
I can't even believe it's been ONE year since I ran the Chicago Marathon!!! I couldn't even dream of attempting that now. Not to mention, thank goodness I wasn't signed up for this year since all races are cancelled due to COVID-19 😦 You might wonder why in the world I would sign up to… Continue reading Once upon a time, I ran a marathon….
Luca technically started FIRST grade is this week! I had a difficult time processing that he turned 6 last week, now I get to process that I have a first grader. What!?!? Our school district has opted for remote learning until October 30 for all students. However, that's just not feasible for kids like Luca.… Continue reading First Grade – COVID-19 Style
Wow, I can't even wrap my head around where the last six years of my life went. They have been a roller coaster of emotions and full of changes! I remember finding out that Luca had Partial Trisomy 13 when he was couple weeks old just like it was yesterday. I can still feel ALL… Continue reading Just like that, Luca is SIX!
The COVID-19 pandemic has no end in sight. It's been a rough few months for him 😦 Unfortunately, it's impossible to explain why school was suddenly cancelled, therapy temporarily ended and why he is just stuck at home with his parents and brother! Luca didn't leave the house once between March and May. His first… Continue reading The Pandemic + Luca
I started this blog a while back as an inspiration for other families as well as for myself. I wanted a way to keep track of all of the little details of Luca's progress so I wouldn't forget over time. Well, life happened and I just stopped for a while...a long while. Let me backtrack… Continue reading The Loving Luca Foundation is Born….
Early Intervention (EI) is a state funded program that offers assistance to children age 3 and under who have developmental delays and disabilities in the state of Illinois. All states have some sort of assistance, but the terms may vary state to state. In Luca's case, EI covered all of his therapies and special equipment… Continue reading The Magic of Early Intervention
One of the most difficult things we have had to deal with in regards to all of the issues Luca has is trusting our medical team. It's sad, but true. While there are many pediatric doctors out there, not all of them are wonderful. Early on, Luca developed a team of specialists: Genetics, urology, neurology, plastics,… Continue reading Trusting Your Medical Team
