Living with and conquering Partial Trisomy 13
It's been a while, but life is so busy these days!! Luca is a busy 8 year old and his brother, Landon, is now 6 with endless amounts of energy. Most days are great, but some days I STRUGGLE!! Parenting is a challenge in general, but raising two very different little boys is hard -… Continue reading No judgement, please…
Happy New Year! I can't believe it's already 2022....time flies! Every January, I like to take a little time to reflect on the previous year. It's important for me to remember all of the good from the previous year and to consider all of the things I would like to improve upon. There was SO… Continue reading Special needs, Special feelings
I can't even believe that Luca will be seven years old tomorrow. Seven years of ups and downs with this little guy have really flown by. The saying that the days are long, but the years are short is SO TRUE! Although it's difficult to remember what life was life before Luca some days, I'm… Continue reading Luca is SEVEN
It may not always be easy, but it's worth it....that's what they say, right?? It's certainly cliché, but it holds true. There are some days that I am sad, angry and frustrated with this hand I've been dealt. There are others that I couldn't imagine my life any other way! There is one key phrase… Continue reading The Journey is Not Always Easy
Today is a GREAT day to celebrate women!! Women are amazing beings and we deserve to be celebrated every day, but today is our day! This day is global day to celebrate the social, economic, cultural and political achievements of women as well as to raise awareness about women's equality. Today, I want to give… Continue reading International Women’s Day
Happy New Year!!! I promised that I would keep up on blogging, but time has not been on my side. There are just not enough hours in the day and the last couple of months have been BUSY!!! A quick recap of the last couple months: school for Luca is still fully remote, Luca lost… Continue reading A New Year with a New Update
I can't even believe it's been ONE year since I ran the Chicago Marathon!!! I couldn't even dream of attempting that now. Not to mention, thank goodness I wasn't signed up for this year since all races are cancelled due to COVID-19 😦 You might wonder why in the world I would sign up to… Continue reading Once upon a time, I ran a marathon….
Luca technically started FIRST grade is this week! I had a difficult time processing that he turned 6 last week, now I get to process that I have a first grader. What!?!? Our school district has opted for remote learning until October 30 for all students. However, that's just not feasible for kids like Luca.… Continue reading First Grade – COVID-19 Style
Wow, I can't even wrap my head around where the last six years of my life went. They have been a roller coaster of emotions and full of changes! I remember finding out that Luca had Partial Trisomy 13 when he was couple weeks old just like it was yesterday. I can still feel ALL… Continue reading Just like that, Luca is SIX!
The COVID-19 pandemic has no end in sight. It's been a rough few months for him 😦 Unfortunately, it's impossible to explain why school was suddenly cancelled, therapy temporarily ended and why he is just stuck at home with his parents and brother! Luca didn't leave the house once between March and May. His first… Continue reading The Pandemic + Luca
Loving Luca 