About

Luca is our firstborn son who has diagnoses of Partial Trisomy 13 (PT13), Autism and Epilepsy. He is now 6 years old and is one of the most inspiring human beings I know! He is such a happy boy and is incredibly loving in his own way. For a child with so many obstacles in life, he truly appreciates the simple things and has a zest for life that makes him such a joy to be around. While he has had many more hurdles than the average child, he continues to amaze us as he tackles his challenges one by one. PT13 is extremely rare and we have no idea what his future holds, but we are sure that it will be bright and happy!

This page is dedicated to Luca’s journey! I hope it gives the inspiration I was so desperately trying to find to anyone who has child with PT13 since there is so little information on the web about it. We also would love family and friends that are interested to follow along 🙂